Every time I sit down to write an update here, I struggle because A.) There are so many things to say and I don't know where to begin and B.) Most of what is on my mind has to do with how difficult life has been parenting this beautiful boy lately. It's hard to write about how things are going sometimes without feeling like I'm turning this into a place to just vent negative emotions and experiences. But the reality I guess is that parenting a child with these issues just isn't easy, and putting a sugar coating on the daily grind is next to impossible.
The great news is that Ethan is doing tremendously well in school. I continue to pinch myself daily - it's feels too good to be true. He has had a few minor behavior problems there, but they put a plan into action immediately and he seems to have responded well. He has been riding the bus for a few weeks and literally squeals gleefully each time he steps foot on the bus each day. He absolutely loves it and I've got to admit, the extra hour it buys me each day has been pretty amazing as well.
His behavior at home continues to worsen and I'm completely perplexed. He is fairly aggressive and has been hitting/kicking me on a regular basis, as well as showing some self-injurious behaviors like head banging. I've not found a way to get the upper hand in this house and it's starting to really wear me down in every way possible. In January he'll have a multi-disciplinary team meeting with the center for autism at our children's hospital and I've heard they offer a positive parenting practices class for parents who struggle with these problems. It feels good at least to know that I'm not alone.
Ethan hasn't worn his cochlear implants for months, since late June to be exact. I'm trying to keep up with the sign language, but I've got to admit that I've been feeling really overwhelmed lately and haven't done the best job in that department. I've been daydreaming about going back to school in the interpreter program and eventually becoming a licensed ASL interpreter. It would take years, but I've got to become fluent and why not turn it into a career option while I'm at it?
Ethan's dad is coming home for 17 days straight (a record I think), so we're really looking forward to having him around for the holidays and beyond.
Happy Holidays everyone!