Tuesday, October 06, 2009

One Tough Monkey

I love the juxtaposition of the monkey suit with the serious countenance.

I can't believe how long it has been since my last post here. The weeks have just flown by and at times it feels hard to keep all the wheels in motion. There are so many appointments, so many forms, so much to read and do and think about.

Ethan has been full of surprises lately, some that lift my spirits and some that may lead to the creation of a padded room in the basement, (for me, not him.) 

The autism diagnostic process continues, as do the explosive behavior problems that he seems to unleash only on me. Maybe that's a good thing. Maybe it's one of the only typical things about him. Don't all kids save their worst behavior for mom?

He's maneuvering that bike around the driveway like he's been doing it all his life. We spent about 2 years working on teaching that skill. Now he not only pedals, but turns the wheel while continuing to push through the turn...not an easy task when you isolate all the motor skills. 

This morning he looked over at the cat eating and said (and signed) "Zola hungry cereal", which is his way of saying the cat named Zola is hungry and she's eating cereal! That's huge huge huge. That's making conversation for one thing, something he simply has not done. It's also putting 3 words together in 2 different languages. Um, WOW!

He has been making notable progress with potty training at home and at school. I don't want to go into the details of this and suffice it to say that progress for him is not the same as you would expect of a typical child his age, but that is beside the point. He is starting to get it! We're hesitant to get too excited about this since his way of moving forward with every new skill is to take a few steps backward in between. It's one of the the most frustrating features of apraxia. After months of therapy you might hear him say a word or make a phonetic sound that you've waited for, only to find out that it's the last time you'll hear it for months more to come. Apraxia really tests the patience of the kids, their families, the teachers, and therapists who work in concert to help slay this beast. 

But Ethan's slaying it BIGTIME.