Tuesday, October 06, 2009

One Tough Monkey

I love the juxtaposition of the monkey suit with the serious countenance.

I can't believe how long it has been since my last post here. The weeks have just flown by and at times it feels hard to keep all the wheels in motion. There are so many appointments, so many forms, so much to read and do and think about.

Ethan has been full of surprises lately, some that lift my spirits and some that may lead to the creation of a padded room in the basement, (for me, not him.) 

The autism diagnostic process continues, as do the explosive behavior problems that he seems to unleash only on me. Maybe that's a good thing. Maybe it's one of the only typical things about him. Don't all kids save their worst behavior for mom?

He's maneuvering that bike around the driveway like he's been doing it all his life. We spent about 2 years working on teaching that skill. Now he not only pedals, but turns the wheel while continuing to push through the turn...not an easy task when you isolate all the motor skills. 

This morning he looked over at the cat eating and said (and signed) "Zola hungry cereal", which is his way of saying the cat named Zola is hungry and she's eating cereal! That's huge huge huge. That's making conversation for one thing, something he simply has not done. It's also putting 3 words together in 2 different languages. Um, WOW!

He has been making notable progress with potty training at home and at school. I don't want to go into the details of this and suffice it to say that progress for him is not the same as you would expect of a typical child his age, but that is beside the point. He is starting to get it! We're hesitant to get too excited about this since his way of moving forward with every new skill is to take a few steps backward in between. It's one of the the most frustrating features of apraxia. After months of therapy you might hear him say a word or make a phonetic sound that you've waited for, only to find out that it's the last time you'll hear it for months more to come. Apraxia really tests the patience of the kids, their families, the teachers, and therapists who work in concert to help slay this beast. 

But Ethan's slaying it BIGTIME. 


Kel said...

I am so glad to see an update from you, and so glad things are going well! Of course there are things that just, well, test you - but that is totally what kids do no matter how typical or not they are. Ethan is definitely slaying it, and that language amazes me.

leah said...

Ethan in the monkey costume is the cutest. kid. ever!

Riding his bike is a great skill! Apraxia is such a hard thing to battle. They thought Matt might be apraxic in the beginning, but now they think he just has a phonological disorder. People wouldn't "get it" because they'd say things like, "Oh, my boy didn't talk until he was three!" With Matt, you could say "ball" and he would repeat, "fah vah!" Nothing even close to the word!

Ethan is making amazing progress in so many areas. I like a quote from Mari's mom on toilet training- "You know what I think about toilet training? *!$# it!" LOL! Nolan will likely be severely delayed in this area because of his posterior urethral valves- we're talking age five or six on average. We'll see how it goes, but I'm not even starting until he shows interest.

We love to see your updates!!!

Kyla said...

Way to go, Ethan!!

Potty training...SIGH. KayTar is 4.5 and it isn't happening here. Good luck!

Kristina said...

Awww.....such a cute little monkey! It's so nice to see your post :-) I hope the autism testing doesn't drag on for too much longer as I'm sure it will be nice to put it that to rest either way.

I nominated you for an award. If you want to play along, stop by my blog and see the details. Not sure if you have time for this or not, so if you don't I won't be offended in the least!

tammy said...

So glad to see an update and how wonderful Ethan's doing! Aiden is going to be the same monkey for halloween ... I should get a picture of him in it as he climbs onto the windowsills, or the beds, or the bathroom sinks - fits perfectly in all ways! ; )

Aliki2006 said...

I"m glad to check in and find all these positive updates! So glad...

I'm impressed about the bike riding, too. L. at nine still can't ride his bike and has no desire to master this skill!

Loudest Mom said...

WTG Ethan!!!

Aunty Neem said...

Hi I'm writing to you from Turkey. Your blog is a very good inspiration for me. We just found out that my nephew is deaf, he's 6 months old. It's not easy to deal with it, but seeing kids with CI helps a lot... We're waiting for the results, for the surgery, we've been told that we have to wait till his first birthday... Thank you for blogging... more than thank you....

Aunty Neem

Cheryl said...

Ethan looks so cute in that monkey costume! Does he like to wear it? Are you taking him trick or treating or is it just for school? Either way, he is ADORABLE as always.

He is making such amazing progress and is slaying this thing on his terms. His language skills always amaze me and I know they will continue to do so.

I can't believe he is riding his bike so well. His skill know no bounds at this point. His is just going to keep going forward, you'll see.

Any room for me in that padded room? LOL. I will be really quiet.

How is he sleeping?

How are you doing?