We've been busy getting settled and finding our groove in our new location. There are days when I look around and just can't believe that we live in this house. It's such a good feeling to look out the windows into the woods and imagine Ethan growing up here. I've longed to put down our roots for 5 months and now we can begin to sink into this place. I haven't taken any of it for granted for a moment. We are truly blessed.
Our new home is 5 minutes away from the newest (and nicest) campus of the children's hospital. They have everything there so we're moving Ethan's therapies and a few of his clinic visits with doctors to this location. I used to drive 1.5 hours each way for his speech and 1 hour each way for his OT and PT and now it's all within a few miles of our home. Unreal!
We're about 20 min. from Ethan's school. Right now we are transporting him ourselves, but in the future when he's a bit bigger we'll have our new school district do the driving. Our new school district which on Thursday agreed to pay to send him to the deaf school! Yes! That news is still sinking in. I have been in battle mode since June, so this is fairly life-changing for our family. The fight is over. For now.
There's no question that a deaf child with apraxia should be sent to a school that specializes in teaching communication. The issue has been and will always be about money. It's sickening to me that a child born and raised in a less affluent community isn't given a fair shot to meet their potential. I could blog about my passion for school funding on a separate blog and have a new post every day! Teaching in a rural and impoverished school district made this a sore spot for me, but having a child with disabilities has turned it into a gaping wound.
The IEP meeting was actually enjoyable. They had 3 people at the table and we brought Ethan's teacher from the school for the deaf as well as the director of the program he attends. We rewrote the goals from the last IEP as he has made so much progress since August. How about that! We only came to a impasse when I asked for a one on one aide for Ethan. They said they would look into it but that it was unlikely they would be able to provide one. I'm not surprised and I'm not going to let it take away from the victory that we achieved through this move!
I'm off to meet an old friend for lunch. Life is pretty swell these days for this family. I hope it is for yours as well.