Saturday, May 31, 2008

Keeping it together.

Ethan saw one of his audiologists last week in Cincy and performed quite well in the sound booth. He has had his 2nd cochlear implant for only 6 months and can now hear with that side as well as with the right side. He hears down to 20 db, which is truly miraculous if you ask me. The last time I checked there were only 1300 people nationwide with bilateral implants and two thirds of them were children. Ethan will be part of the research that informs surgeons and hospitals everywhere that bilateral surgery is not so risky and is actually a good thing.

We haven't sold our house yet. We've shown it 24 times in 2 weeks and have heard some feedback indicating that the people who are the most interested are also feeling a bit sheepish about a certain aspect of our floors, even though the structure that is our foundation appears to be in fine shape. Without getting into the details, let me just say that it has made for an emotional roller coaster, and we've been on that ride for nearly 3 years anyway and are ready to see it END. 

Ethan has to start school on August 18 if he's to attend the class at St. Rita. The world will not end if he is not there next year, I know this, but my hopes have been building on it for so long that I fear what will happen to me if this doesn't come together.

Somehow in the midst of the chaos Ethan has decided to experiment with a defiant and explosive personality. In my usual coping style I've been reading a book called The Explosive Child and have sufficiently worked myself into a neurotic frenzy over his cognitive abilities to problem solve situations. I've learned a lot of useful information from the book, but I have little faith that any of the suggestions will actually work with Ethan. The communication barrier is coming into play in significant ways now and a huge part of the problems we see are due to his lack of language skills.

I know he is also just a 2 year old and is in many ways just a typical little boy. It's not helpful though when I'm getting head butted in the face or bitten and kicked. At one time I would have been really embarrassed by the looks we get when he acts this way publicly, but now I just want to scream out to people for help. This kid is really teaching me a thing or two about my own patience threshold and ability to deal with stress.

Wish me luck, I'm going to need it.


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I've developed google reader phobia (thanks for the term slouchy) and have not been able to visit or comment on your sites. I'm certainly thinking of you though.

Wednesday, May 21, 2008

May Madness!

Here's our pad as it appears in the multiple listing service.

Hypes:
  1. Ethan was accepted into the preschool classroom at St. Rita School for the Deaf!
  2. Our house is looking great and has been shown 11 times in 7 days!
  3. We are going to Cincinnati Sunday to meet our realtor and look at several homes.
  4. Ethan's team of therapists are helping us write goals for a strong IEP.
  5. Rich is spending less time traveling and more time home.
  6. The Internet continues to bring me in contact with amazing people who are giving me support and helping me to support others.

Gripes:
  1. I don't have as much time to read/comment on my favorite blogs.
  2. I have to keep the house spotless at all times and be ready to vacate with Ethan on a moments notice.
  3. Ethan has been missing naps and his behavior has been TERRIBLE.
  4. Ethan's sensory stuff is in full gear and is driving us all crazy. We just started brushing him again and we're hoping that will help.
  5. Melatonin isn't the miracle cure that I thought it was one month ago.
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The style of this post was done in honor of two special people, R@T and Coletta. Love you both.

Friday, May 02, 2008

This is just ridiculous.


Should I send these with Ethan's application for enrollment to St. Rita School for the Deaf? I mean, how can you turn this guy down? All he needs is a brief case and he's ready to roll!

Our IEP meeting is not until June 17, which gives me plenty of time to prepare and more time to obsess over getting this house ready to sell. Yay!