Ethan sitting in circle time in his classroom.
I opened my email today to find a message from a mother in Nebraska (Hi Stacy!) whose son is also profoundly deaf (with cochlear implants), severely apraxic, and wears glasses. She had recently found Ethan's World and wrote to tell me that it gave her comfort and inspiration.
It made my day to hear from Stacy! What an honor it is to be able to inspire people with Ethan's story. I'm just blown away by that.
I started this blog in order to keep our friends and family updated on all things Ethan, and here we are nearly 3 years later, meeting (and even inspiring!) families who face similar challenges. I've been able to share the highs and lows with people like Kristina in Delaware, parents who know first-hand the roller-coaster ride that accompanies the unraveling of one diagnosis after another.
The Internet ROCKS!
Today I attended a field trip with Ethan's class to a beautiful old theater downtown for a children's production of Rudolph the Red-Nosed Reindeer. It was fantastic! We were in the 2nd row, so Ethan and his classmates had an excellent view of the stage and were able to see the kids facial expressions and the details of the set and the costumes. Ethan sat still for nearly an hour, something I never thought I'd see without heavy medication. He was fixated on the interpreters for the first few minutes, but then realized that he was missing a dozen dancing elves and quickly turned his gaze to the front of the stage.
Mom reminded me that when you have a special needs child you can often get special (re: awesome) seating at events like this. If you think I'm going to exploit my child's disabilities just so I can have a better seat at plays and performances, then you are exactly right :-)
(Actually, I can't imagine he would have as much interest sitting anywhere else....)