I need some input from those of you who have a cochlear implant. Ethan is still having trouble putting on the second implant which was activated on November 20.
Over a month into the journey, he still hates to have the implant put on. I started turning the volume level down to 1 so that it wouldn't be so jarring (the only word that I can use to describe what I'm guessing he feels), and that seemed to help tremendously for a few days. I'd very quickly turn it up to 8 or 9 before putting the battery pack in his shirt and that was fine with him.
Now he is even starting to cry when I put it on with the low volume settings. Granted, he gets over it pretty quickly (but NOT easily, it takes distraction and work on our part), and we're fairly sure that he is reacting due to something other than actual pain. His pain threshold is extremely high and we usually know when he really hurts.
Could it just be that the sound quality is so foreign and strange compared to his other implanted side that it has him freaked out? For what it's worth, his first implant goes on with the volume set at 12 with no problems.
What is it like in the moment that the headpiece is attached to your head?
We see an audiologist on Jan. 9, though not the one that typically works with Ethan as she is on maternity leave. I really hope we get some clarity on this soon.