Friday, November 09, 2007
Bring it on.
Here’s the thing: Ethan is probably (I think definitely) apraxic. That is, he’s likely got a new diagnosis on the way of a developmental apraxia of speech. It’s a neurodevelopmental disorder that can be very serious. I’m in that mindset right now of facing a new foe, in full on warrior mode. I mentioned the possibility of apraxia awhile back and could barely deal with it then. Now I’m feeling resigned and ready for battle.
It’s extremely complex (for my pea brain) and I’ll share what I am learning more in future posts, especially as we have a true diagnosis and take steps to deal with it in therapy. I’m ready to request that Ethan’s local pediatrician sign off on some labs that I would like done so we can get a very clear picture of the biochemical state of Ethan’s gut, of his food allergies (such as milk, soy, gluten), possible malabsorption issues, vitamin and mineral deficiencies, etc. My research (from medical databases and experienced parents of apraxic children) shows a very strong correlation between apraxia and the health of the gut and intestines. So the hope is that fixing the gut will thereby fix the brain. I find it interesting that this is the same path that many parents and doctors of autistic children take to heal their children, and on paper Ethan shares many characteristics of autism.
Once the local pediatrician is on board with running these labs we will map our course. It’s nothing radical or experimental, just diet and supplement changes. We’ve already started the fish oil after many weeks of reading about brands and types of omegas. I’ve also found a new vitamin recommended by parents and DAN! (Defeat autism now) doctors that I ordered online this week.
One thing is for sure, we are prepared and ready to do battle and we’ve got one smart and strong-willed little boy fighting right along with us.