Today was my big day of making my case to Ethan’s local pediatrician and it couldn’t have gone more smoothly. I needed her signature on the test requisition forms for the labs I want to have done on Ethan, so I thought I might have to really make a case and do some convincing. I approached it like a business meeting and drew an outline for the points that I wanted to cover and the strategies to employ in case of resistance. She was more than open to my ideas, she was receptive and excited. I made copies for her of each test that I’d like to have done and she was eagerly reading them and thanked me for the copies. I showed her the book that I’ve been reading titled Healing the New Childhood Epidemics by Kenneth Bock, M.D., and she wrote the title and author down and said she’s very interested in learning more. I have the test kits and will send them to the lab hopefully next week, and then we’ll have to wait for 2 weeks to see what the results are. I really have no idea of what to expect from the results, but I imagine that we’ll learn something new about Ethan’s body and take the next steps towards healing.
We are using The Great Plains Laboratory, Inc. and so far I’ve been mighty impressed with their customer service. You can easily reach someone via the phone and leisurely ask your questions and get them answered. Many DAN! doctors work with this lab and they have an outstanding reputation.
Here are the 3 we’re starting with:
Organic Acid Test (not to be confused with The Electric Kool-Aid Acid Test) – This is the most comprehensive test of overall health that we could do, it’s a good starting point as it checks for vitamin and mineral deficiencies, neurotransmitter metabolites, yeast/fungal metabolites, and fatty acid abnormalities among many other things. And my favorite aspect of this test is that it just requires a morning urine sample. Easy!
Food and Inhalant Allergy Testing
This will be the most illuminating I suspect. When Ethan was in pre-op getting prepared for surgery, the nurse asked me if he had any food allergies. I replied that I thought he might have intolerance to milk and soy, but that I wasn’t sure if they were actual allergies. She asked me to describe his reactions to these foods and upon hearing my description replied, “oh honey, those are allergies”. This tests for 95 foods. Once we know the real picture, we’ll adjust his diet accordingly. I’ve been very interested in trying the gluten and casein free diet, but I think I’ll wait until we get these results to make those changes. We’ll have to go to the local hospital to get blood drawn for this one.
This is another simple test, as it requires only one strand of hair. I’m not overly concerned that Ethan might have elevated levels of metals in his body, but I have a feeling that we will be surprised by what we see. Many kids who are on the spectrum of developmental delays have impairment of the natural detoxifying process of sulfation. If that’s the case with Ethan, it’s imperative to find out and deal with the problem to avoid damaging neurological consequences.
So there it is, in a nutshell. I may be coming across as an anxiety ridden and worried mother, and maybe that’s partially true. But it’s important for me to find ways to treat Ethan’s symptoms in a holistic manner and get at the root causes of his behaviors and diagnosis. Too many of the people that have worked with him are specialists and it’s a little myopic for me to say the least. They are great at what they do, but I’m tired of treating symptoms with drugs like prevacid, which Ethan takes every day and has for 1.5 years. It’s time to get to the bottom of the root causes and treat them carefully and as naturally as possible. Then I think we’ll see some significant improvement.
Thank you Sandra for pointing me in the right direction.